Meet Giovanni, born July 24, 2006, a happy and healthy baby. When Giovanni was just 6 weeks old, he began getting life threatening infections and after months of hospitalization was diagnosed with NEMO, a rare and severe immune disorder.
His parents were told he would die before his 1st birthday without a marrow or cord blood transplant.

Support

Reach out to family and friends, no matter where they live. One way to make that easier is the Web, using online communication tools like blogs.

Resource to try include:

Be The Match Registry® (operated by the NMDP): makes sure every patient has the best possible chance to receive the transplant he or she needs.

CarePages: an organization that helps people connect with one another, to share their experiences, passions, difficulties and triumphs.

CaringBridge: an organization that offers free, easy-to-create Web sites that help connect friends and family when they need it most.

Look Good Feel Better: if someone has touched your life, and you'd like to send a message of support, thanks or even just a smile, send an eGram.

Leukemia and Lymphoma Society: is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services.

CureSearch: unites the world's largest childhood cancer research organization, the Children's Oncology Group, and the National Childhood Cancer Foundation through our mission to cure childhood cancer. Research is the key to the cure.

The Valerie Fund: mission is to provide support for the comprehensive health care of children with cancer and blood disorders

Daily OM: offers inspirational messages every day, and registration is free.

Cancer Care: provides free, professional support services for anyone affected by cancer.

If there is a site that you know with positive messages of support that you feel we should include, please email us. We'd love to share.

Also, there is plenty of additional information online, such as: